Session Four — Pediatric Intestinal Rehabilitation Center
This is not primary care where visits are shorter. All manner of people (Social Worker, Dietician, Physician, Nurse) are involved in seeing patients for > 1hr. It is part of research into Short Bowel syndrome (doctor is an expert/specialist) at the “GUTSY Clinic”: they track symptions as kids transition to an adult clinic. Most patients here are premature and have hepatic problems.
“We follow around 120 patients who have short bowel syndrome and intestinal failure and about 50 patients who are dependent on home parenteral nutrition,” says Dr. Kinberg, who established the Pediatric Intestinal Rehabilitation Center in 2015 nearing the end of her fellowship training in pediatric gastroenterology at Columbia. “Our intent was to build a center where children could receive care from multiple specialists – all in one place. There is evidence that patients with this disease who are cared for by a multidisciplinary team in one location have improved outcomes.”
“MEDREC” stands for Medication Reconciliation (prescriptions, refills). Resident said “it’s always a mess”. For one, do you know that they’ve been taking it? Hard (impossible?) to ascertain.
Bed 1 -----> Bed 2 -----> Home
Medrec 1 Medrec 2 Medrec 3
Only patient I could see was a ~10 yo F. Rest did not want me in room.